The successful linking of research funding organizations in E-Rare-1 and the subsequent exemplary joint funding activities have attested the need of, and the acknowledgment from, the research community for transnational funding of collaborative, multidisciplinary and ambitious projects on rare diseases. It has leveraged funding for rare disease research in countries without specific programmes for rare diseases and thus enabled the participation of researchers in these countries to transnational projects.
The current E-Rare-3 project will extend and strengthen the transnational cooperation on rare disease research funding organizations in the 5-year period of 2015-2019 by building on the experience and results of the previous ERA-Net programmes E-Rare-1 and E-Rare-2. It aims to provide an international model platform for implementing Joint Transnational Calls. The consortium comprises 25 institutions from 17 European, Associated and non-European countries. Its international dimension will be directly translated into close collaboration with IRDiRC and other relevant European and international initiatives.
About E-Rare
E-Rare Partners
Florence GUILLOT
E-Rare Coordinator
Daniel Cuadrat
Financial & Administrative Manager
Christina PESAVENTO
Main Representative
Etienne RICHER
Main Representative
Dale DEMPSEY
Deputy Representative
Avi ISRAELI
Main Representative
Ralph SCHUSTER
Main Representative
Michaela FERSCH
Deputy Representative
Katarzyna SAEDLER
Deputy Representative
Arnaud GOOLAERTS
Main Representative
Florence QUIST
Deputy Representative
Stephanie RESCH
Main Representative
Iris FORTMANN
Deputy Representative
Anabela ISIDRO
Main Representative
Rita CAVALEIRO
Deputy Representative
Sofia DIMITROPOULOU
Main Representative
Vassilis KALENDRIS
Deputy Representative
Domenica TARUSCIO
Main Representative
Paola TORRERI
Deputy Representative
Claudio FRANK
Deputy Representative
Gaetano GUGLIELMI
Main Representative
Raffaele RUOCCO
Deputy Representative
Giselda SCALERA
Deputy Representative
Gabor TOTH
Main Representative
Olivier BOEHME
Main Representative
Toon MONBALIU
Deputy Representative
Maija BUNDULE
Main Representative
Uldis BERKIS
Deputy Representative
Aysim YILMAZ
Main Representative
Michaela MANOLE
Main Representative
Nicoleta DUMITRACHE
Deputy Representative
Sonja van WEELY
Main Represenative
Harald MOONEN
Deputy Representative
Jale SAHIN
Main Representative
Banu BURUK
Deputy Representative
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For more information ABOUT E-Rare please contact:
E-Rare Coordinator
Daria JULKOWSKA
Tel.: +33(0) 1 78 09 80 78
+33(0) 6 20 14 13 81
daria.julkowska@agencerecherche.fr
Agence Nationale de la Recherche - ANR
Health & Biology Department
50 Avenue Daumesnil
75012 Paris, France