The successful linking of research funding organizations in E-Rare-1 and the subsequent exemplary joint funding activities have attested the need of, and the acknowledgment from, the research community for transnational funding of collaborative, multidisciplinary and ambitious projects on rare diseases. It has leveraged funding for rare disease research in countries without specific programmes for rare diseases and thus enabled the participation of researchers in these countries to transnational projects.
 
The current E-Rare-3 project will extend and strengthen the transnational cooperation on rare disease research funding organizations in the 5-year period of 2015-2019 by building on the experience and results of the previous ERA-Net programmes E-Rare-1 and E-Rare-2. It aims to provide an international model platform for implementing Joint Transnational Calls. The consortium comprises 25 institutions from 17 European, Associated and non-European countries. Its international dimension will be directly translated into close collaboration with IRDiRC and other relevant European and international initiatives.

Partners

E-Rare Partners

Daria JULKOWSKA
E-Rare Coordinator

Juliane HALFTERMEYER
Project Manager

Dalar HAMON-ARSLANYAN
Financial & Administrative Manager
 

Corinna WILKEN
Main Representative

 

Christina PESAVENTO
Main Representative

Etienne RICHER
Main Representative

Nathalie GENDRON
Deputy Representative

Marilyn DESROSIERS
Deputy Representative

Avi ISRAELI
Main Representative

Irit ALLON
Deputy Representative

Ralph SCHUSTER
Main Representative

Michaela GIRGENRATH
Deputy Representative

Sabrina LEGIES
Deputy Representative

 

Arnaud GOOLAERTS
Main Representative

Stephanie RESCH
Main Representative
 
Iris FORTMANN
Deputy Representative

Anabela ISIDRO
Main Representative

Carlos PEREIRA
Deputy Representative

Sofia DIMITROPOULOU
Main Representative

Vassilis KALENDRIS
Deputy Representative

Karen DEWAR
Main Representative

 

Katja GROSSMAN
Main Representative

 

Rafael de ANDRES MEDINA
Main Repesentative
 
Ignacio IBAANANTE
Deputy Representative

Domenica TARUSCIO
Main Representative
 
Paola TORRERI
Deputy Representative

Claudio FRANK
Deputy Representative

Gaetano GUGLIELMI
Main Representative

Raffaele RUOCCO
Deputy Representative

 
Marcin CHMIELEWSKI
Main Representative

Gabor TOTH
Main Representative

Elöd NEMERKENYI
Deputy Representative

Anne-Cécile DESFAITS
Main Representative

Karine GENEST
Deputy Representative

Maria Luisa MORO
Main Representative

 

Olivier BOEHME
Main Representative

 

Maija BUNDULE
Main Representative

Uldis BERKIS
Deputy Representative

Aysim YILMAZ
Main Representative

Véronique PLANCHAMP
Deputy Representative

Sonja van WEELY
Main Represenative

Harald MOONEN
Deputy Representative

Jale SAHIN
Main Representative

Aysenur OKATAN
Deputy Representative

Banu BURUK
Deputy Representative

 

E-Rare 2012 - Created by Toussaint Biger