E-Rare will organize a workshop on data sharing and harmonization in order to promote those issues in the rare disease research community. The workshop will take place on the 4th of May in Berlin, Germany at the Ramada hotel and will be preceded by a poster session in the late afternoon of the 3rd of May This workshop will be organized back to back to the RD-Connect, NeurOmics and EURenOmics meeting.
The conference sessions will be composed of plenary session, round table discussion and hands on session to discuss the following topics: - Application of the data sharing policies and recommendations by the researchers - Data sharing and harmonization tools and platforms - Integrating, tools, platforms and patients participation: what is desirable and how to get there? - « Hands on » experience Download the program for more information.
E-Rare will provide 10 travel grants for young researchers (PhD students and/or post-docs) involved in projects financed by E-Rare. All grantees will profit from 1 hotel night (from 3rd to 4th of May 2017) at Ramada Hotel where the workshop will take place. Each grantee will have to arrange his/her travel, and the travel costs will be reimbursed after the meeting. The maximum amount per grantee is €300.