This section is dedicated to the E-Rare and all important events related to the research on rare diseases. It is being updated on a weekly basis.

Rare Diseases and Orphan Drug registries 2nd Workshop

Rare Diseases and Orphan Drug registries 2nd Workshop
Monday, October 21, 2013

The 2nd International Workshop “Rare Diseases and Orphan Drug Registries” is organised in the framework of the EPIRARE project (“European Platform for Rare Disease Registries”, co-funded by EU Commission, DG SANCO).
It is open to scientists, clinicians, patients’ and parents’ Associations, policy makers and enterprises.
The Final Program of the Workshop will be based on the abstracts received.

The main aims of the workshop are:

  • (i) to share different experiences in the registration of rare diseases, including rare cancers and malformations, in Europe and beyond;
  • (ii) to highlight the strengths and opportunities of linking rare disease registries and other platforms being developed for research;
  • (iii) to promote networking of registries and contribute effectively to the strategies for the implementation of the common EU Platform for rare disease registries.

IMPORTANT: Dedline for abstract submission is 31 of July 2013.

For more information, registration and abstract submission click HERE

E-Rare 2012 - Created by Toussaint Biger