Orphanet unveils a new website to mark its 20th year

 

Orphanet (www.orpha.net) is a unique resource, gathering and improving knowledge on rare diseases so as to improve the diagnosis, care and treatment of patients with rare diseases.

To mark its 20th anniversary, the Orphanet website is undergoing a complete makeover, starting with the look and feel of the site.

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Save the date for the 4th RE(ACT) congress

 

E-Rare associates with Blackswan Foundation to co-organize 4th International Congress on Reaserch of Rare and Orphan Diseases - RE(ACT) 2018.

The congress will take place from 7-10 of March 2018 in Bologna, Italy.

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EMA guidelines to H2020 rare diseases calls

 

European Medicines Agency has published the final guidance document for applicants to Horizon 2020 topic “New therapies for rare diseases” on the EMA website. Find more information HERE

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10 years of E-Rare video: the project CLC & MLC project by Raul Estevez

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10 years of E-Rare video: the project CLC & MLC project by Raul Estevez

At the occasion of the 10th anniversary of E-Rare, we are glad to share with you short movies on research projects funded by E-Rare.

In this video, Dr Raul Estevez explain the project CLC & MLC, ‘CLC chloride channels and Megalencephalic leukoencephalopathy: molecular mechanisms and therapeutics’.

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For more information ABOUT E-Rare please contact:

 

E-Rare Coordinator

Daria JULKOWSKA

Tel.: +33(0) 1 78 09 80 78


+33(0) 6 20 14 13 81

daria.julkowska@agencerecherche.fr

 

Agence Nationale de la Recherche - ANR

Health & Biology Department

50 Avenue Daumesnil

75012 Paris, France

 

E-Rare 2012 - Created by Toussaint Biger