The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.

 

E-Rare associates with Blackswan Foundation to co-organize 4th International Congress on Reaserch of Rare and Orphan Diseases - RE(ACT) 2018.

The congress will take place from 7-10 of March 2018 in Bologna, Italy.

10 years of E-Rare video: the project Splice-EB by Marjon Pasmooij

10 years of E-Rare video: the project Splice-EB by Marjon Pasmooij

At the occasion of the 10th anniversary of E-Rare, we are glad to share with you short movies on research projects funded by E-Rare.

In this video, Dr Marjon Pasmooij explain the project Splice-EB, ‘Splicing therapies for Dystrophic Epidermolysis Bullosa’.

E-Rare 2012 - Created by Toussaint Biger