PARADIGM, a collaborative IMI project that aims to make meaningful patient engagement in medicines development a reality. The objective is to develop processes and tools for three key decision-making points: research priority setting, design of clinical trials and early dialogue with regulators and HTA bodies. Share your opinion and experience on patient engagement NOW! Learn more HERE

 

The CORBEL Open Call invites researchers to apply to access technologies and services from more than 20 facilities from 10 different research infrastructures across Europe.
Learn more HERE

 

The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.

News & Media

  PARADIGM, a collaborative IMI project that aims to make meaningful patient engagement in medicines development a reality, such as through better tools and recommendations was launch last March.    The objective is to develop processes and tools for three key decision-making points: research...
50 Days lef to apply for CORBEL Open Call! The CORBEL Open Call invites researchers to apply to access technologies and services from more than 20 facilities from 10 different research infrastructures across Europe. Selected projects will gain unprecedented opportunities to utilise a wide range of...
Dear Colleagues, As you may have heard, the new General Data Protection Regulation (GDPR) comes into effect May 25, 2018. Your privacy comes first!   As you are part of E-Rare community and has expressed interest in our calls, conferences and rare diseases related news OR registered into our "...
Rome (Italy) 19 January – The International Consortium for Personalised Medicine (ICPerMed), announced today the publication of their first "Best Practice in Personalised Medicine" Award 2018. The objective of this award is to encourage and disseminate best practice examples in personalised...
We wish you a #RAREvolutionary Happy New Year 2018! To celebrate the new year, we decided to offer for a limited duration a special registration rate for the RE(ACT) Congress 2018 held in Bologna, Italy (7th – 10th March 2018). The special price is 250 Euro (= 300 CHF) only payable by credit...
The pre-announcement of the 10th E-Rare joint call for funding multilateral research projects on rare diseases 2018 "Transnational research projects on hypothesis-driven use of multi-omic integrated approaches for discovery of disease causes and/or functional validation in the context of...
Radiz, the Rare Disease Initiative Zurich, is a joint action of the University of Zurich, the Children’s Hospital Zurich and the University Hospital Zurich, aimed at establishing a unique clinical research priority program in the field of rare diseases. It is meant to combine basic and clinical...
The European Commission's Joint Research Centre (DG JRC), together with DG SANTE, is developing the EU Rare Diseases Registries Platform. The Platform aims to cope with the enormous fragmentation of RD data contained in RD patient registries across Europe by promoting EU-level standards for data...
The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. IRDiRC, officially launched in 2011, was originally conceived with two main goals: to contribute to the development of 200 new therapies and the means to diagnose most rare...
  The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. IRDiRC, officially launched in 2011, was originally conceived with two main goals: to contribute to the development of 200 new therapies and the means to diagnose most rare...

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