28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. The theme for Rare Disease Day 2019 is 'Bridging health and social care'.

For most people living with a rare disease, as well as their family members or carers, the reality of daily life can include any combination of the following: collecting and taking medicines, attending appointments, participating in physical therapy, using specialist equipment and accessing various social and community support services and respite care. Managing these care-related tasks alongside their usual daily activities such as work, school and leisure time can be challenging.

For more information, check this website.

 

PARADIGM, a collaborative IMI project that aims to make meaningful patient engagement in medicines development a reality. The objective is to develop processes and tools for three key decision-making points: research priority setting, design of clinical trials and early dialogue with regulators and HTA bodies. Share your opinion and experience on patient engagement NOW! Learn more HERE

 

The CORBEL Open Call invites researchers to apply to access technologies and services from more than 20 facilities from 10 different research infrastructures across Europe.
Learn more HERE

 

The International Rare Diseases Research Consortium (IRDiRC) is proud to announce the new vision and goals for 2017-2027. See the publication HERE.

Get funding to access biomedical Research Infrastructures - CORBEL Open Call

Get funding to access biomedical Research Infrastructures - CORBEL Open Call

Apply by October 31st, 2018 for Corbel Open Call !

The CORBEL Open Call invites researchers to apply to access technologies and services from more than 20 facilities from 10 different research infrastructures across Europe. Selected projects will gain unprecedented opportunities to utilise a wide range of high-end technologies and services. These include state-of-the-art offers from the fields of advanced imaging, biobanking, clinical and translational research, curated databases, marine model organisms, mouse mutant phenotyping, high-throughput screening, structural biology as well as systems biology.

Costs for travel to partner sites will be reimbursed by CORBEL and access to service providers will be granted without access fee (extra costs for consumables may apply). Projects will be supported at every stage, with CORBEL project managers helping scientists to navigate between different service providers and exploit the full potential of the offers available. To support industry projects, the CORBEL consortium also launched an Innovation Office, consisting of a well-experienced team dealing with specific needs of industry when applying to this Open call (e.g. regarding IP issued or confidentiality agreements). 

Learn more about the CORBEL Open Call by visiting CORBEL website (http://www.corbel-project.eu/open-call.html).

CORBEL – Coordinated Research Infrastructures Building Enduring Life-science services – is an EC Horizon2020 project uniting 13 Biological and Medical Science Research Infrastructures (RIs). In CORBEL, the participating RIs expand their cooperation in order to harmonise researchers’ access to their cutting-edge technologies and services by establishing a sustainable platform of aligned services that will enable faster admission to and a wider portfolio of technologies and services to boost research projects from academia and industry.

 

E-Rare 2012 - Created by Toussaint Biger