The European Joint Programme on Rare Diseases (EJP RD) has published the pre-announcement for the Joint Transnational Call 2020. This call is for proposals on "Pre-Clinical Research to Develop Effective Therapies for Rare Diseases".

For more information please visit the EJP RD website: http://www.ejprarediseases.org/index.php/joint-transnational-calls/

Rare Disease Day 2020 will be celebrated this year on Saturday the 29th of February - a fittingly rare date! Coordinated by EURORDIS in partnership with National Alliances, the aim is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. Lead-up events throughout the month will be organised by members of the rare disease community including patient organisations, healthcare professionals, researchers, and policymakers across 101 countries.

Rare diseases will affect 1 in 20 people in their lifetime, but their rarity often leads to delays in diagnosis, and means that information and treatment options can be limited. Rare Disease Day is an opportunity to strengthen international cooperation, vital for identifying and classifying these diseases, coordinating research, and providing access to treatment and support for patients, their families, and carers.

For more information, go to the Rare Disease Day 2020 website.

 

The European Rare Disease Models & Mechanisms Network (RDMM-Europe) has been established by Solve-RD – an EU-funded research project. The overall aim is to boost research in rare diseases, discover new disease-causing genes and obtain evidence for pathogenicity through functional validation.

For more information, visit the following website.

E-Rare SYMPOSIUM

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ERA-Net for Research Programmes on Rare Diseases
E-Rare SYMPOSIUM

As a part of its programme the E-Rare Consortium is organizing the special Symposium dedicated to collaboration in rare diseases research. The meeting will take place on the 30 of October 2014 at Casa dell'Aviatore in Rome, Italy.

The event will present a perfect occasion to gather rare diseases stakeholders: funders, researchers, patients’ organizations and regulatory bodies. 

Three symposium sessions will give an overview on how cooperation among funders, scientists and other relevant stakeholders helps in advancing rare diseases research with ultimate benefit to patients.

E-Rare will take this opportunity to present its future plans and activities in the context of the forthcoming "E-Rare-3" action.

The participation in the Symposium is FREE OF CHARGE. However the number of places being limited we encourage future participants to register as soon as possible.

More information about the event, detailed programme and link to registration can be found HERE or on our website www.e-rare.eu

Looking forward to seeing you in Rome!

E-Rare Consortium

 

 

www.e-rare.eu contact@erare.eu

E-Rare 2012 - Created by Toussaint Biger