This section is dedicate to all types of European Initiatives that are related to the research on rare diseases.

EU platform on RD Registration

EU platform on RD Registration

New online knowledge-sharing platform on Rare Disease

The European platform on Rare Disease Registration. is open to all RD registries i order to act as a knowledge of generation centre benefiting healthcare providers including Euroepan Reference Networks, researchers, patients and policy-makers in the common effeort to improve diagnosis and treatment for patients living with a rare disease.

E-Rare 2012 - Created by Toussaint Biger