Welcome to the E-Rare Reports and Publications section. You will find here E-Rare Workshop Reports, Publications and Catalogs.

Reports

Thursday, September 15 2016

The E-Rare Strategic Workshop was organised on March 7, 2016 in Barcelona (Spain) to give input on themes of the coming Joint Transnational Calls JTC...

Friday, January 30 2015

Rare diseases represent an important public-health issue, affecting 26-30 million persons across Europe, and a major challenge for research. The fragmentation of resources and knowledge for the...

Friday, January 30 2015

Rare diseases represent an important burden to public-health, affecting 26-30 million persons across Europe. From a scientific standpoint, most of these diseases...

Sunday, October 21 2012

E-Rare-1 report from the E-Rare Workshop "Towards a Work Plan for the Transnational Opening Programmes for Rotation and Mobility for Rare Diseases and Orphan Drugs". The workshop...

Sunday, October 21 2012

E-Rare-1 report from the European Workshop "Bridging Patients and Researchers to Build the Future Agenda for Rare Disease Research in Europe". The workshop took place on the 1st...

Sunday, April 08 2012

E-Rare-1 report from the E-Rare wokshop on "Clinical Trials and Natural History of Rare Diseases". The workshop took place on the 14th and 15th of April 2008 in Madrid, Spain.

E-Rare 2012 - Created by Toussaint Biger