This section is dedicated to the E-Rare and all important events related to the research on rare diseases. It is being updated on a weekly basis.

Dr Emmanuelle Rial-Sebbag

"Principles of informed consent in biobanks"
Dr Emmanuelle Rial-Sebbag

Emmanuelle Rial-Sebbag is a lawyer. Graduate in health law (Faculty of Bordeaux), Ph.D in Health Law (mention very honourable, University Paul Sabatier Toulouse). She is working since 2000 at the INSERM Unit 1027 in Toulouse (Epidemiology and public health analysis: risks, chronic diseases and handicaps) in the team Genomics, biotherapy and public health:interdisciplinary approach (Dir: Anne Cambon-Thomsen) as a permanent researcher in health law and bioethics. She is an Associate lecturer in bio-law and bioethics at the University of Medicine in Toulouse (Purpan). She is involved in several research projects at National, European and International level, on the topics of biobanking, innovative therapies, biomedical research involving human beings and direct-to-consumer genetic tests. She is responsible for several teaching and educational sessions especially on the ethical and legal aspects of biomedical research involving human or patients’ rights regarding biobanking. She is currently developing a research on the Governance of Research in biotechnology and the role played by normative approaches at national and European level.

E-Rare 2012 - Created by Toussaint Biger