The International Summer School on Rare Disease Registries and FAIRification of Data is a part of a series of training activities proposed by the European Joint Programme on Rare Diseases (EJP RD) which will take place at the Istituto Superiore di Sanità, Rome, Italy. The first module “Rare Disease Registries” starts on September 23 till September 25, 2019. The second module “FAIRification of data”, starts on September 26 till September 27, 2019.

Onlne registration deadline is June 20th, 2019.

Find more information on the following link.

North American edition of the RE(ACT) Congress 2019 to be held at the Sheraton Center Toronto Hotel in Toronto, Canada, from May 8-11 2019. This 5th edition, the first to be held in North America will include sessions on clinical trials and registries, generalizable rare disease therapeutic approaches, gene editing, cell & gene therapy, stem cells, genetically modified cell therapies/clinical applications of gene therapies indigenous populations and rare diseases, and patient-focused drug development. REGISTER NOW! 

The European Joint Programme on Rare Diseases (EJP RD), which is the successor of E-Rare launches the Joint Transnational Call 2019. The call will  open officially in December. This year projects should focus on accelerated diagnosis and/or exploration of disease progression and mechanisms of rare diseases. More info under www.ejprarediseases.org

Events

External Event
Date of event : on 23 Sep 2019
The International Summer School on Rare Disease Re...
External Event
Date of event : on 1 Apr 2019
External Event
Date of event : on 28 Feb 2019
External Event
Date of event : on 20 Nov 2018
E-Rare Event
Date of event : on 7 Mar 2018

News

27 November 2018
The International Prize for Scientific Research Ar...
Research News
Posted on 12 October 2018
Research News
Posted on 28 August 2018
Research News
Posted on 12 July 2018
Research News
Posted on 12 July 2018

E-Rare 2012 - Created by Toussaint Biger