North American edition of the RE(ACT) Congress 2019 to be held at the Sheraton Center Toronto Hotel in Toronto, Canada, from May 8-11 2019. This 5th edition, the first to be held in North America will include sessions on clinical trials and registries, generalizable rare disease therapeutic approaches, gene editing, cell & gene therapy, stem cells, genetically modified cell therapies/clinical applications of gene therapies indigenous populations and rare diseases, and patient-focused drug development. REGISTER NOW! 

The European Joint Programme on Rare Diseases (EJP RD), which is the successor of E-Rare launches the Joint Transnational Call 2019. The call will  open officially in December. This year projects should focus on accelerated diagnosis and/or exploration of disease progression and mechanisms of rare diseases. More info under www.ejprarediseases.org

28 February 2019 will be the twelfth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities. The theme for Rare Disease Day 2019 is 'Bridging health and social care'.

For most people living with a rare disease, as well as their family members or carers, the reality of daily life can include any combination of the following: collecting and taking medicines, attending appointments, participating in physical therapy, using specialist equipment and accessing various social and community support services and respite care. Managing these care-related tasks alongside their usual daily activities such as work, school and leisure time can be challenging.

More information, HERE.

Events

External Event
Date of event : on 28 Feb 2019
28 February 2019 will be the twelfth int...
External Event
Date of event : on 20 Nov 2018
E-Rare Event
Date of event : on 7 Mar 2018
External Event
Date of event : on 23 Oct 2017
External Event
Date of event : on 24 Sep 2017

News

27 November 2018
The International Prize for Scientific Research Ar...
Research News
Posted on 12 October 2018
Research News
Posted on 28 August 2018
Research News
Posted on 12 July 2018
Research News
Posted on 12 July 2018

E-Rare 2012 - Created by Toussaint Biger