The European Joint Programme on Rare Diseases (EJP RD) has published the pre-announcement for the Joint Transnational Call 2020. This call is for proposals on "Pre-Clinical Research to Develop Effective Therapies for Rare Diseases".

For more information please visit the EJP RD website: http://www.ejprarediseases.org/index.php/joint-transnational-calls/

Rare Disease Day 2020 will be celebrated this year on Saturday the 29th of February - a fittingly rare date! Coordinated by EURORDIS in partnership with National Alliances, the aim is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives. Lead-up events throughout the month will be organised by members of the rare disease community including patient organisations, healthcare professionals, researchers, and policymakers across 101 countries.

Rare diseases will affect 1 in 20 people in their lifetime, but their rarity often leads to delays in diagnosis, and means that information and treatment options can be limited. Rare Disease Day is an opportunity to strengthen international cooperation, vital for identifying and classifying these diseases, coordinating research, and providing access to treatment and support for patients, their families, and carers.

For more information, go to the Rare Disease Day 2020 website.

 

The European Rare Disease Models & Mechanisms Network (RDMM-Europe) has been established by Solve-RD – an EU-funded research project. The overall aim is to boost research in rare diseases, discover new disease-causing genes and obtain evidence for pathogenicity through functional validation.

For more information, visit the following website.

Events

External Event
Date of event : on 29 Feb 2020
Rare Disease Day 2020 will be celebrated this year...
External Event
Date of event : on 23 Sep 2019
External Event
Date of event : on 1 Apr 2019
External Event
Date of event : on 28 Feb 2019
External Event
Date of event : on 20 Nov 2018

News

Research News
19 November 2019
The European Joint Programme on Rare Diseases (EJP...
Research News
Posted on 21 May 2019
Posted on 27 November 2018
Research News
Posted on 12 October 2018
Research News
Posted on 28 August 2018

E-Rare 2012 - Created by Toussaint Biger