Welcome to the E-Rare Reports and Publications section. You will find here E-Rare Workshop Reports, Publications and Catalogs.
Wednesday, October 18 2017
The European Commission's Joint Research Centre (DG JRC), together with DG SANTE, is developing the EU Rare Diseases Registries Platform. The Platform aims to cope with the enormous fragmentation...
Monday, August 07 2017
Over the last two decades, important contributions were made at national, European and international levels to foster collaboration into rare diseases research. The European Union (EU) has put...
Monday, August 07 2017
Dr Daria Julkowska, E-Rare coordinator discusses the importance of rare diseases research with Gary Finnegan, the journalist of Horizon, The EU Research & Innovation Magazine.
Read the...
Wednesday, December 05 2012
Survey and Strategic Analysis on Future Themes and Needs for Rare Diseases Research Funding
In the European Council recommendation on rare diseases (RD), Member States are...
Wednesday, December 05 2012
Strategy Paper on Platforms for Rare Diseases Research. Next Generation Sequencing Platforms
The work undertaken during the E-Rare project was aimed at facilitating the links...
Sunday, April 08 2012
Research Programmes on Rare Diseases in the E-Rare Partner Countries
Networking of research programmes first requires mutual knowledge of specific conditions, strategies and...
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For more information ABOUT E-Rare please contact:
E-Rare Coordinator
Daria JULKOWSKA
Tel.: +33(0) 1 78 09 80 78
+33(0) 6 20 14 13 81
daria.julkowska@agencerecherche.fr
Agence Nationale de la Recherche - ANR
Health & Biology Department
50 Avenue Daumesnil
75012 Paris, France
