Welcome to the E-Rare Reports and Publications section. You will find here E-Rare Workshop Reports, Publications and Catalogs.
Publications
The European Commission's Joint Research Centre (DG JRC), together with DG SANTE, is developing the EU Rare Diseases Registries Platform. The Platform aims to cope with the enormous fragmentation...
Over the last two decades, important contributions were made at national, European and international levels to foster collaboration into rare diseases research. The European Union (EU) has put...
Dr Daria Julkowska, E-Rare coordinator discusses the importance of rare diseases research with Gary Finnegan, the journalist of Horizon, The EU Research & Innovation Magazine.
Read the...
Survey and Strategic Analysis on Future Themes and Needs for Rare Diseases Research Funding
In the European Council recommendation on rare diseases (RD), Member States are...
Strategy Paper on Platforms for Rare Diseases Research. Next Generation Sequencing Platforms
The work undertaken during the E-Rare project was aimed at facilitating the links...
Research Programmes on Rare Diseases in the E-Rare Partner Countries
Networking of research programmes first requires mutual knowledge of specific conditions, strategies and...
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For more information ABOUT E-Rare please contact:
E-Rare Coordinator
Daria JULKOWSKA
Tel.: +33(0) 1 78 09 80 78
+33(0) 6 20 14 13 81
daria.julkowska@agencerecherche.fr
Agence Nationale de la Recherche - ANR
Health & Biology Department
50 Avenue Daumesnil
75012 Paris, France